The Kids Eye Biobank

Helping Children See a Healthier Future

We are revolutionizing research on eye and vision conditions for all children, everywhere.

The Kids Eye Biobank collects biological samples, health information, and medical images from individuals with eye and vision conditions. It serves as a centralized resource for research and learning while connecting researchers, clinicians, and affected individuals around the globe.

By enabling collaboration and access to high-quality data, the Kids Eye Biobank supports research aimed at reducing negative outcomes and improving child health.

our process

01

enrollment

enrollment

500+ participants

Our informed consent processes have been enhanced with patient perspectives to improve the overall experience.
02

collection

collection

50,000+ clinical images

700+ annotated biological samples

We collect resources and data, handling them with the utmost care.
03

Storage

Storage

30+ eye conditions represented

All data is de-identified and securely stored.
04

Sharing

Sharing

Data use requests from researchers in 5+ countries

Our resources have a global impact by supporting research that is conducted by top researchers around the world.

About The Project

We are revolutionizing research on eye and vision conditions for all children, everywhere.

About The Project

The Kids Eye Biobank collects biological samples, health information, and medical images from individuals with eye and vision conditions. It serves as a centralized resource for research and learning while connecting researchers, clinicians, and affected individuals around the globe.

By enabling collaboration and access to high-quality data, the Kids Eye Biobank supports research aimed at reducing negative outcomes and improving child health.

Check out our pamphlet for a brief overview of what the Kids Eye Biobank is, or, go to our “About Us” page.

Behind the research

We enroll individuals representing a broad range of childhood eye and vision conditions. These include anterior segment disorders (e.g., glaucoma, cataracts, etc), as well as rare pediatric eye cancers (e.g., retinoblastoma, optic pathway gliomas).

 

Our biobank contains a rich, highly annotated dataset that includes:

  • Medical images
  • Biological samples (e.g., blood, saliva, aqueous humor, tissue)
  • Health information (e.g., demographic and clinical data)

 

How We Work With Patients

Did you know that patients are at the center of everything we do? The Kids Eye Biobank was built using a patient-centred approach, ensuring patient perspectives help guide our work. Patients are involved in two important ways:

As a participant

Participants contribute biological samples, health information, and medical images that are securely stored and used to support future research.

Take Part

As a partner

Patient partners are active members of the Kids Eye Biobank team. They contribute to research, operations, and decision-making processes, helping ensure our work reflects the needs and priorities of those with lived experience.

Join Our Team

Funders & Affiliations

Thank you to our generous funders for their support:

become a partner

Funders

Affiliations